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Implications for family carers when people with psychosocial disability have individualised funding packages – literature review

Overview

This literature review examined how individualised funding programs impact family carers of people with psychosocial disability. Findings show positive outcomes when adequate support, information and funding are provided, but challenges arise with administrative burdens and inadequate resources. Success depends on program design and implementation quality.

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Individual authors

Primary Authors:

  • Dr. Carmel Laragy (Research Fellow) - lead researcher
  • Frances Sanders (General Manager Organisational Initiatives, Mind Australia)
  • Dr. Lisa Brophy (Senior Research Fellow at University of Melbourne and Director of Research at Mind Australia)

Key insights

Key Insights:

  1. Outcomes depend on program design, adequate funding, and support provision

  2. Carers benefit from increased choice, control, and flexibility in services

  3. Administrative responsibilities without support create significant burden for family carers

  4. Flow-on benefits occur when participants have improved mental health outcomes

  5. Information access and peer support are critical for successful implementation

  6. Family carers rarely receive their own assessment despite legal entitlements

  7. Austerity measures and funding cuts undermine program effectiveness significantly

  8. Market-based approaches require careful management to protect vulnerable participants

Did this resource draw on transformative evidence?

<p>This document was partially based on experiential expertise. It incorporated perspectives from clients, carers, and practitioners through various studies reviewed, and included anecdotal accounts from carers in Australia&#39;s NDIS trials. However, it was primarily a literature review synthesising research rather than direct experiential knowledge collection.</p>
<p>This document incorporated practice wisdom extensively. It synthesised findings from practitioners across multiple countries and service settings, included staff experiences with implementation challenges, and drew from organisational knowledge about transitioning from traditional to individualised funding models. However, it was primarily research-based rather than practice-generated.</p>
<p>This document was heavily based on research and evaluation insights. It systematically reviewed 91 references from academic studies, randomised controlled trials, program evaluations, and research findings from multiple countries (US, UK, Australia, Germany, Netherlands, Sweden) examining individualised funding programs and their impacts on family carers.</p>

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Categories

Resource type

Literature Review